HEALTH LITERACY AND KNOWLEDGE OF DEMENTIA: A SCOPING REVIEW OF CAREGIVERS AND COMMUNITY PERSPECTIVES

Abstract

Background: Dementia has become increasingly as a consequence of global aging. However, low levels of health literacy and limited knowledge about dementia often hinder effective caregiving. Stigma surrounding dementia in society also poses a significant barrier to proper care. Purpose: This scoping review aimed to identify the characteristics of studies examining dementia-related literacy and knowledge among caregivers and communities. Method: This scoping review search was conducted through Scopus, PubMed, and ProQuest databases using the PRISMA-ScR guideline. Results: Six of the studies used a cross-sectional design, while one employed a qualitative approach. The main findings showed low health literacy on dementia, varied levels of dementia knowledge, sociodemographic influences, stigma and societal perceptions, and caregiving challenges. Conclusion: Literacy and knowledge levels regarding dementia remain low, influenced by factors such as age, gender, education, income, residence location, and prior caregiving experience. Stigma was found to increase the caregiving burden and reduce the quality of care.

Keyword: Caregiver, Dementia, Health Literacy, Older Adults